American
Cancer Society
800-227-2345, offers a wide range of general information and
specific information on ovarian
cancer (use ACS search function). The American Cancer Society (ACS) is the nationwide
community-based, voluntary health organization dedicated to eliminating
cancer as a major health problem by preventing cancer, saving lives and
diminishing suffering from cancer, through research, education, advocacy,
and service. ACS materials include books, brochures and other materials
providing specific information on ovarian and other gynecologic cancers.
Many materials are available in Spanish and the ACS can accommodate other
language needs through its National Call Center. Its Call Center is
available twenty-four hours a day, 7 days a week by calling
1-800-ACS-2345.
DC Cancer Consortium
Every day the DC Cancer Consortium - a
collaboration of more than 60 public and private organizations in the
District of Columbia - works to reduce cancer incidence and mortality,
reduce racial and ethnic disparities in cancer treatment, and improve the
quality of life for people with cancer. In April, 2006, the DCCC completed
the DC Cancer Control Plan 2006-2010 -- a road map to guide their efforts. The
DCCC website provides local information, support groups and a
calendar of events, as well as a downloadable resource guide for patients,
caregivers and health care professionals.
Address: 4125 Albemarle St NW, Washington, DC 20016
Phone: 202-895-9447
Gynecologic Cancer
Foundation
[GCF] and its Women's Cancer Network, 800-444-4441, has
developed the Women's Cancer
Network, an interactive web site dedicated to informing women around
the world about gynecologic cancer. WCN's mission is to assist women who
have developed cancer, as well as their families, to understand more about
the disease, learn about treatment options, and gain access to new or
experimental therapies. This site enables women to find appropriate cancer
treatment specialists in their area.
The Women's Cancer Network serves to educate women on ways to prevent the development of
cancer. Its confidential
risk-assessment questionnaire is designed to give women a personalized
understanding of their individual risks of developing gynecologic cancer.
Following completion of the questionnaire, a detailed plan for lowering
cancer risk is presented.
National
Cancer Institute [NCI] Information Service, 800-4Cancer, NCI is a great source of information on
clinical
trials as well as cancer specific diseases, like
ovarian
cancer.
NCI offers a national central clearing-house, a practical first stop
for those first diagnosed with cancer. Trained personnel provide medical
information by telephone related to specific cancers, treatments, and
coping strategies. Printed materials include "What You Need To Know
about Ovarian Cancer," lists of cancer centers and clinical trial
information.
OncoLink
A website of the University of Pennsylvania Cancer Center, offers a wide
variety of information about a variety of diseases, including ovarian
cancer psychosocial support, screening, prevention, clinical trials,
symptom management, conference and meetings, financial issues, and is a
great link to other resources. (Type "ovarian cancer" in the
OncoLink search engine)
Center for Disease Control and Prevention's
(CDC)
Fact sheet on Ovarian
Cancer.
U.S. Public Health Service's Office of
Women's Health (OWH), 202-690-7650, provides general
health information as well as specific information about
ovarian
cancer. The OWH (within the US Department of Health and
Human Services) provides national leadership in advancing women's health
through public policy, research, service delivery, and education. The OWH
develops, stimulates, and coordinates women's health research, health care
services, and public and health professional education and training across
the agencies of the Department of Health and Human Services. Programs
include the Centers of Excellence in Women's Health. These centers provide
integrated and comprehensive clinical services, including regular
screening for breast and gynecologic cancers, as well as research on
women's health issues. The OWH also developed the National Women's Health
Information Center (NWHIC). This website is the gateway to over 800 topics
on women's health, including reproductive health. It offers a toll free
phone service (1-800-994-WOMAN).
Johns Hopkins Oncology Center has very
patient friendly information about ovarian cancer.
http://ovariancancer.jhmi.edu/menu_understanding.cfm
Cancer Care, Inc.
800-813-4673, is a non-profit organization whose mission is to provide
free professional help to people with all cancers through counseling,
education, information and referral, and direct financial assistance.
Conversations!,
The International Newsletter for Those Fighting Ovarian Cancer,
806-355-2565, which is distributed monthly and written by an amazing
ovarian cancer survivor until her passing in Aug 2003. Now family
and friends continue her work. It reports on treatment options, clinical
trials, coping skills, and early detection strategies. It offers
humor and upbeat information to the ovarian cancer survivor.
Gilda
Radner Familial Ovarian Cancer Registry, 800-682-7426, offers
information and a registry that tracks families with a history of ovarian
cancer.
Gilda's Club,
212-647-9700, provides places where people with cancer and their families
and friends join with others to build social and emotional support as a
supplement to medical care. Free of charge and nonprofit, Gilda's Club
offers support and networking groups, lectures, workshops and social
events in a nonresidential, home-like setting. Funding is solicited from
individuals, corporations, and foundations.
National
Ovarian Cancer Association, 877-413-7970 [Canada] and
416-971-9800, is a site in memory of Corrine Boyer. This Fund
embraces a two-fold mission: raising awareness about cancer of the
ovary and increasing financial and educational resources to prevent and
successfully treat ovarian cancer.
National Ovarian
Cancer Coalition [NOCC], 888-ovarian or 888-682-7426, is a
national membership organization with state chapters. It offers
information and resources about ovarian cancer. NOCC promotes
awareness and education for the general public and medical community and
funding for research to find an early detection mechanism.
Ovarian
Cancer National Alliance, 202-331-1332, is the national umbrella
organization that works to increase public and professional understanding
of ovarian cancer, and to advocate for more effective diagnostics,
treatments, and cure. Members include survivors and family members,
local and national organizations, and healthcare providers.
Materials include awareness information and national policy issue papers.
The Alliance sponsors an annual Advocacy Conference in September.
Ovarian Cancer Research Fund, Inc
[OCRF], 202-268-1002, was founded in
December 1994 by Sol Schreiber to honor the memory of his wife, Ann, a
distinguished public administrator and her courageous five year battle
with ovarian cancer. OCRF is a 501(c)3 not-for-profit organization devoted
to the formulation of early diagnostic treatment programs and research
toward the ultimate conquest of ovarian cancer. As OCRF strives to find a
cure, it also seeks to support patients and their loved ones in
understanding this disease and its treatment as well as to provide
outreach programs and raise public awareness.
Ovarian Discussion List is an e-mail support group which allows survivors/others a chance
to exchange information and support daily. The list is not
monitored for medical accuracy. The easiest way to subscribe is to go to
www.acor.org
and browse through the cancer lists until you get to Ovarian. Archives of
all lists are at this site. Another way to subscribe is to send an e-mail
to
Listserv@listserv.acor.org.
In subject area, leave blank or type a dash. In message area, type
"Subscribe ovarian" followed by your first and last name. For
example: Subscribe ovarian Mary Jones, email to listserv @listserv.acor.org.
Ovarian
Plus:
Gynecologic Cancer Prevention Quarterly, 703-715-6075, is a newsletter
with timely information about international research, diagnosis, and
treatments for ovarian cancer and other gynecologic cancers.
Self-help for Women with Breast or Ovarian Cancer,
SHARE
212-719-1204
[hotline]; 212-719-0364, is a non-profit organization that provides
support services for women, men and children who have been affected by
breast or ovarian cancer. SHARE's services include information
hotlines in English and Spanish, survivor-led support groups, public
education, advocacy and wellness programs. SHARE's model of
survivorship also promotes public awareness and early detection of these
diseases.
National Coalition for Cancer
Survivorship, NCCS,
has a great website full of information
for the person with cancer. Make sure you link to the "Essential
Care"
part of the NCCS website for information on side effects, pain management,
nutrition, exercise, employment rights and more.
